Andrew was worried. Several years ago, a storm had just cut electricity to the home in Export, PA, that he shared with his parents and his brother, Henry. Both young men suffered from Spinal Muscular Atrophy (SMA), a neuromuscular illness similar to Stephen Hawking’s.

Electricity powered not only their wheelchairs, but the ventilators keeping them alive. It also powered their computers, a portal to their work...

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